Disabled Firefighter with RSD and incurable tumor needs your help.
Their story
In August of 2022, I was also diagnosed with a rare tumor in my right knee after biopsies were done during a knee scope. I was diagnosed with a diffuse tenosynovial giant cell tumor. There is no cure for this type of tumor and the treatment options are limited as it is so rare. The options are either medication that hopefully stops the tumor from growing. A radical knee surgery where they cut a 10-inch or larger incision in the front and back of my knee and scrape everything in my knee and I mean everything to try and get as much tumor as possible. As it's impossible to get it all and the regrowth rate is over 70%. So surgery is not a good option especially since I have RSD from getting hurt as a firefighter and it could cause the RSD to get worse in that leg. There is also radiation but that can cause issues in the joint and increased pain and is not a guarantee that it would kill all the tumor or stop it from coming back. Lastly, if the other options don't work they would have to amputate my leg below the hip to stop the tumor from eating away healthy bone. I have been seeing an oncologist 2.5 hours away at the University of Kansas cancer center. My oncologist and I have decided to try medication first. This medication, however, can cause liver failure so I have to have labs done constantly to check to make sure that isn't happening as there are only 2 medications that can be used for this type of tumor. I will have to have medical treatment regularly for the rest of my life because of this tumor, unless it, unfortunately, gets to the point where they would have to amputate my leg.
So having not one, but two incurable conditions that need constant medical treatment I have had to swallow my pride and ask for help. Which is hard when I used to be the one that would come when help was needed. I want to thank you for your time and I greatly appreciate any donations big or small as anything helps. If you can't donate you can still help by simply sharing my campaign link.
Wall of support
Donations & Comments
Only administrators, organizers, and beneficiaries can reply to comments.
❤️
I am so sorry to hear the struggles you have gone through and are continuing to go through. No one deserves to be in constant pain all the time. Hoping this donation can make a small difference and brighten your day :) It may not seem like it now, but there is a light at the end of the tunnel. If you ever need anyone to talk to, feel free to reach out via Instagram (@guavagirl12). I’m a practicing counselor in the field of psychology so I am open to anyone who needs someone to talk to. Have a wonderful day!
Non-Donor Comments
There have been no comments to this fundraiser yet.
The FundTheFirst guarantee. If a verified fundraiser is ever proven to misrepresent its beneficiary, we'll step in and work to refund donors.
I’m so sorry to hear you’ve had such a hard time getting financial compensation or help. My grandmother had nerve damage from a surgery and spent many years in pain. Luckily a spinal cord stimulator was able to help her get back to a normal life. I hope that you’re able to find a solution for your pain. Keep fighting and making your art.