Hello, I wanted to bring attention to anyone out there that can be a considerable help for a Disabled Medical First Responder who has been disabled from Severe complications after a Multi Level Lumbar Spinal Fusion with Cadaver Bones and Cages.
The Complications not only disabled her but caused her to go blind 4x ,to Become diagnosed with multiple ailments With the main being rarest, complex neurological case . ( still left untreated)
Diagnosis History Now- Dysautonomia POTS, IIH(idiopathic intracranial hypertension -excess spinal fluid throughout brain and spine-spinal fluid leak) Fibromyalgia,Spondylosis, Degenerative Disc Disease, Spinal Stenosis, Osteoarthritis, Peripheral Neuropathy, Rheumatic Mitral Valve regurgitation, Essential Tremors, Psuedoaneurysm , Vertigo, Unsteady Gait, Fall Risk, Anemia, Autoimmune, Chronic Fatigue, lethargy, Pain, Nausea. TIA x2 (mini stroke) Visual Disturbances,Migraines.Electrolyte Imbalance.
They are also to be testing for MS, Lupus, any or applicable tests to determine what else is happening. This not only is a debilitating Chronic condition that hasn’t been treated, but it has also taken her quality of life completely away. Now on Palliative Care and awaiting competent, ethical care and life saving surgeries such as a VP Shunt. She is now having serious issues with her teeth due to 18 different RX plus daily, and the neurological issues. Finding out after 2 recent, temporary capped root canal’s that she needs an additional 5K to fix the rest of the damage and cavities and permanent crowns.
She also has been trying to keep up a full time schedule and job of keeping up with appointments, Gas, Transportation, to not only multiple hospital visits and stays, testing, scans, Nero Opthamologist, Nephrologist, Cardiologist, Urologists, Vascular Specialist, GI, PCP, Home Health, Palliative Care, IV Infusion services 1x a week for Chest Port. (Central Line ).
All this while her health has deteriorated significantly. She’s lost her housing, vehicle,(bought a used car after her SSDI back pay) everything and is now on SSDI (low income) and barely surviving. She has made huge progress and then has been blocked at every turn . She is a humble, caring, giving, loving person who has been weathering a huge storm and is in need of some Assistance. There’s a patient care advocacy group that takes over cases likes hers to be there at all appointments- transportation, they make sure all Documentation is Completed, correct, with treatment plan,.Finding Top Drs, Referrals. All around comprehensive care package that would immensely improve her quality of life with that type of support and care. The problem is that is also around 5K. She is in need of help with: Bills, Housing, Food, gas for Transportation, Personal Hygiene. RX . The basic Needs.
She’s helped people all of her life and saved lives and is still advocating. We know that the money is an estimate. Any little bit helps and this is a big need. I hope we can get this out and help her to take some of this horrible weight and stress she’s carrying around with her. She’s wonderful and hiding this horrible invisible illness and laughing it off as well as she can. 1 person can only take so much. Let’s turn this storm around for her please 🙏
God bless
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