I am a Navy Veteran who married another Navy Veteran. Together we are raising a family of daughters who also want to serve our community.
After a 4 year battle with stage 4 breast cancer that almost took my life more than once, I was well enough to support my husband in following his dream of becoming a Police Officer in New Smyrna Beach.
With everything going as planned I became a Patient Care Tech working in the Progressive Care Unit at Advent Health New Smyrna. We were living the dream.
October 2nd as I was working I had a stroke, was coded and sent to the ED of my own hospital. Since then I have learned that I am having uncontrolled seizures every hour. Some are minor and some are full-blown petite mal seizures. My husband has tried his hardest to stay by my side and care for me but as we all know the bills never stop coming.
I hate to have to ask for help, but our simple life is more than the Police department pay can handle. I am hopeful that by the end of the year my doctors will figure out what is happening and get me back to work. But I am terrified that I may be put on permanent disability. I'm a worker and don't know where to turn to cover the gap between now and then.
My husband's brother in arms has afforded us the opportunity to turn to all of you for help. We do so with heavy hearts and a face full of tears. We don't know what the future looks like but we need your help to get there.
As we pay the endless doctor bills and co-pays to keep moving forward with treatment we keep falling further behind and I don't want my husband worried about finances, I want his mind clear to protect the community he swore to protect and be vigilant and keep himself and his shift mates safe.
Our goal for this campaign is just to survive this journey and be able to continue to live. Please find it in your heart to help our blue family and help in any way. We promise to do the same when we are out of our storm. This to shall pass, we believe this with all our heart.
Thank you in advance from the bottom of our hearts.
Updates
43? I can't believe it! I never thought that I would be grateful to be this age. But after Stage 4 metastatic breast cancer at 36, countless infections, infinite and continuing reconstructive breast surgeries, a mini stroke which brought out a seizure disorder at 42, while working. So I am overjoyed and blessed to be 43 today. My daughter had to give me a sumatriptan injection for a migraine which almost always leads to a seizure. She is a brave girl and wise beyond her 17 years. Thank you everyone for the birthday wishes, the continuing love, support and well wishes. I am truly blessed and I could not do this without each of you. Thank you. I truly love and appreciate all of you. Love Tonya❤
Good morning to our beautiful community, family, and friends. It's been a few days since I've given y'all an update. I'm not sure if I told you in my last update about my most recent MRI results, but my neurologist says that the lesions look the same and that nothing has changed with them which is a good thing. I'm now at 150mg of Topamax in conjunction with 3000mg of keppra for my seizure disorder. Next week I will begin 200mg of Topamax which is what my neurologist is thinking will be my max dosage. so far I think I agree. I honestly feel better than I have since before all of this came crashing down on me, October 2nd. I'm thinking a little bit more clearly with each passing day, I'm a bit more stable on my feet, I'm having more complete sentences and praise God, I believe that this is day #5 without any seizures! That's the longest without seizures since this nightmare began. I am hopeful and prayerful that this progress will continue and that we are on the right track with treatment and meds and that hopefully I won't have to go to Mayo clinic. All I'm doing is taking it one day and sometimes 1 hour at a time. I'm still going through breast reconstruction surgeries from cancer and I meet with my amazing surgeon next week to discuss and plan the next surgery. I hope that everyone has a great day. Thank you all for blessing my family in every way imaginable. Lots of love, The Beatty's
Here's an update from today's neurology appointment as promised....
I saw my neurologist today. She's happy with the progress that I'm making with the Topamax, but we I am not quite where she needs me to be. I've had 2 seizures since my last appointment. 1 induced by a virtual eye exam and one like the day when things started at work. But her train of thought is because I'm making such good progress with Topamax that once I reach my max dosage of 200mg the week of 12/14 Jessica thinks that I should be ready to come back to work after my next appointment on 12/21. I feel much better each day. although I do have moments of setbacks. some big. some small. I am praying so hard to come back to work after my next appointment it'll be the best Christmas present I could ask for. I'm being cautiously optimistic. I hope that everyone had a wonderful Thanksgiving with family and friends With love and thanks, Tonya
Tomorrow is another follow up appointment with my neurologist. Hopefully they'll have the results from the MRI that I had this past Wednesday and it'll shed some light on things. These appointments make me so nervous and fill me with so much anxiety. it's like when I meet with my oncologist.... the fear never lessens. This neurology journey is quite different. Scarier in a lot of ways. My oncologist put it best at my last 6 month check up "the brain is so unknown It's such a mystery." Maybe that's why it's so scary for me. it's so unknown and every pill, every test is almost like a guessing game to see if it's going to work or what's going to happen. After I have my appointment tomorrow I will post another update Thank you again for all of the prayers and support
Happy Thanksgiving to my Fund the First family, beautiful community, family and friends. I began my day by watching Fund the First's segment on CBS at 0840 and learning more in depth about why and how they are able to do so much good for our big first responder family. Thank you to everyone at Fund the First for everything that you do for First responders behind the scenes. With gratitude, love and appreciation The Beatty family ❤
Donations & Comments
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Reply from Tonya Beatty4 years agoThank you so much Mrs. Marie. your hugs are definitely felt❤
donated $100
“You are braver than you believe, stronger than you seem, smarter than you think, and twice as awesome as you had ever imagined!” You’ve got this! Many big hugs.
Reply from Tonya Beatty4 years agoMike you are one of the most kindest, caring, most sincere, genuine people that I have the honor to know. Thank you for your encouraging words and your generous donation. I am overwhelmed by your kindness and everyone that continues to rally around us. Thank you ❤
You are all always in our prayers. We love you. Thank you for your service and know that we support you.Uncle Perry and Aunt Kim
Reply from Tonya Beatty4 years agoAunt Kim thank you to you and Uncle Perry so much. Kris and I love and miss you very much. The angel that you gave me when I got cancer hangs above my bed. she's been my protector all of these years. please get in touch with Kris. I know that he would want to talk to you. if you don't have his new number I know that the Wyoming Aunts do. we love you and we thank you.
With love and healing prayers. Dan and I understand stroke and are here for your family for whatever you may need. Just ask.
Reply from Tonya Beatty4 years agoThank you Jenn for your and your hubby's support. it means the world to me. Thank you for your prayers of healing and your generous support towards my family and me. Thank you again and please stay safe out there.❤
God Bless you and your family. My prayer are with you.
Reply from Tonya Beatty4 years agoThank you so much Mrs. Barbara. your prayers and generous donation is appreciated more than you know
Reply from Tonya Beatty4 years agoThank you Ma'am for your amazing and generous gift. Youe Outpouring of love and support is so much appreciated ❤
Reply from Tonya Beatty4 years agoThank you so much Ralph. I appreciate you helping my family and me. Your donation is going to make a world of difference to us.
“When you see a turtle on top of a fence post, chances are he did not get there on his own.” I’ve been blessed with the gift of help from others and it’s a privilege to be able to do the same. Keep the faith.
Reply from Tonya Beatty4 years agoThank you so much Kelly and Dave from thinking of my family and me and for blessing us with your generous donation.
Keep up the fight. We have your backs and you have our prayers.
Reply from Tonya Beatty4 years agoThat means a lot that you are praying for me. Thank you for your prayers and your generous donation.
Reply from Tonya Beatty4 years agoThank you so much Phil for your donation. it means a lot to my family and me.
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Hugs to the whole family ❤