It has been awhile since I updated but we still don’t have answers. It has been 5 months of pure hell.

They have decided it’s more of a risk to try to remove the mass then it is to leave it in there unless it starts growing again or he has more complications from it because the surgery even on a completely healthy person is very dangerous so with all his complications & additional health issues it makes it very dangerous. He has portal vein thrombosis (blood clot between liver & pancreas. Most of his pancreas was destroyed & the small portion remaining is now has chronic pancreatitis which means it’s staying inflamed & not calming down. We also found out he has factor 5 blood disorder which complicates things alittle more. His tumor marker bloodwork has been elevated so now they want to do a PET scan to double check his liver & pancreas for any new growths that could be cancerous. He has several spots on his pancreas but we are praying it is more scar tissue & not anything bad but doing a biopsy around his pancreas can the remaining piece of his pancreas to necrotize. They done a scope a couple weeks ago & took some samples to biopsy but the sample from the only spot they could reach safely around his pancreas came back as slightly contaminated so the test was inconclusive. They are also doing an MRI to scan his brain since he has more memory loss, vertigo & hand tremors. They are testing to see if he had a stroke while he was in the hospital when he got pancreatitis, His blood pressure was very high & he has had symptoms since he was in ICU. His weight is holding right now but he has lost over 60lbs since this all started. Alot of it was muscle & its very hard for him to build it back when he is in so much pain all the time. He is also very fatigued. He is also running fevers off & on & the cause still has not been determined.  He has some good days but they are short lived & usually followed by a few days of him sleeping. He is mentally, physically & emotionally exhausted. Every time we get a few answers we get even more questions. It’s definitely 1 step forward & 2 steps back but we are doing our best to hold it all together. He is in a lot of pain, he is miserable, he isn’t able to work, the doctor bills are horrible & the household bills keep coming but we are lucky he is alive so its all worth is as long as we have him. We have been living off my income with the help of donations because my income alone isn't enough to pay the normal household bills even before we have to pay for additional medical expenses. We hope the social security gets approved soon but until then we could really use some financial help. 

It’s been almost 5 months. Matt is still having a hard time. There isn’t much to update other then he is still fighting while we try to figure out what to do next. They are still not sure if they can even remove the hemangioma at this point. It might be a bigger risk then leaving it in there. They are looking at other things & doing some scopes today. He still can’t work. We already filed our 1st appeal for social security so now we wait for them to decide & probably have to appeal it again since they still don’t have all the final answers yet. Money is tight & we know it’s hard for everyone right now so we greatly appreciate every dime. We also appreciate all the prayers. That is the reason he is still alive today! Thank y’all so much for helping us! 

Follow Matt’s group for more updates 

https://www.facebook.com/groups/1466639477164416/?ref=sharehttps://www.facebook.com/groups/1466639477164416/?ref%3Dshare&exp=9594&mibextid=S66gvF

Finally a good update after a procedure. 

Alot of the fluid from the pseudocysts have drained so the nasty dead necrotized parts of the pancreas have started dropping down around the stent. His stent was clogged up so they cleaned it out. They also removed some extra debris (small pieces of dead pancreas). They also put in another stent from the bottom of the pancreas area to his intestine to help drain more. That stent will eventually come out of where they placed it & pass thru his intestines. He probably wont even notice when he passes it. His pancreatic duct does have a leak in it so we are hoping it will be able to heal itself with more time but he can't say if it will or not. They are going to do the same procedure next Monday to remove more debris & help keep the stent open longer. Then they will be doing a follow up the following week & probably a scan to decide what the next steps will be but we atleast have some steps planned. 

The doctor already figured the duct was leaking however he was happy overall what all he eas able to do today. Matt is not in alot of pain from the procedure but his liver is hurting like always. He is feeling drained right now but his body went thru alot today so that's to be expected. He is on strict orders to relax & rest for the next 24 hours but atleast he gets to do that at HOME!

More updates can be found on Facebook 

https://m.facebook.com/groups/1466639477164416/permalink/1480102112484819/?mibextid=peTKPw

I haven't done alot of updates here. Not alot has changed except Matt got a fever of 102.1 at 4 am this morning. I have a feeling we will get admitted again. I have made a Facebook group if anyone would like to follow updates there & leave Matt some encouraging words! 

https://www.facebook.com/groups/1466639477164416/?ref=share_group_link

We celebrated our baby girl Alyssa's 10th birthday today. She is terrified of heights but did great with her daddy cheering her on. It's these little moments that mean the most