Matt got discharged out of the hospital last night. Tuesday they done a procedure to put a stent from the largest pseudocyst into his stomach to drain some of the fluid. They drained around 900cc during the procedure. They left a tube in his nose that went into his stomach to continue sucking more fluid out for 24 hours. Matt absolutely hates that tube & wasn't allowed to eat or drink while it was in. His throat was killing him from the procedure but he couldn't even drink anything. During that 24 hours an additional 1600cc drained out. Altogether they drained over 2500cc. His stomach is feeling alot less pressure now. The next plan is to try to keep the stent in place & draining for the next 2 weeks. He has to watch what he eats so it don't clog it up & there is a chance that the musy goo part of his pancreas that died will also clog it. (Sorry I know it sounds nasty but this is our life so welcome to the party). He will have a scan on November 10th to determine if more stents need to be put in or if enough has drained that they can start focusing on the necrotized (mushy goo) part of his pancreas. He has about 20% of his pancreas that is healthy. They rest is destroyed so we won't know what the long term effects are till everything is settled down but most likely he will need several procedures, long term care & medications. We still can't biopsy the mass on his liver or remove it until the pancreas issues are cleared up. It's baby steps but it is steps in the right direction this time!!!

Really hoping he can get this tube out so he can atleast drink something soon! 

Good news for once!!! 

No more fluid around Matt's heart or lungs. Heart is normal size again. 

Scan still shows basilar subsegmental atelectasis (small air sacs in your lungs have deflated)

It's most likely from him not being able to breath as deep as normal due to the pain, swelling & things being pushed together. We already knew he still had this but it's not a huge issue right now & should improve with breathing exercises once this is all over!

He still has to see why his armpit is swollen. He is getting a scan done on it tomorrow to check it. He is on antibiotics for infection. He still has suction tube in his nose going into his stomach. It's pulling out alot of fluid from the pseudocysts so not sure if they will be able to take it out or if he will need it another day. He is starving especially since they removed so much fluid from him. His stomach isn't as smashed up like it has been so it's feeling really empty right now. 

Back in Galveston hospital. They admitted Matt again. He needs the giant pseudocyst drained & he is having a few other issues that they need to monitor. Please keep Matt in your prayers!!

Well not the update I wanted to give but.........

Matt's mass has started to have blood flow & grow again since he left the hospital. Not alot but still more then we wanted.

Most of his pancreas is pretty much destroyed & is dead now. It could possibly still be leaking. He is now considered diabetic.  Part or all of his pancreas might need to be removed but that's to be determined later. Pancreatic pseudocysts are pockets of enzymes & pancreatic digestive juices that have leaked. They got worse & he has several of them.  One of them is very large. Its actually as big or bigger then his mass so he is having alot of pain in that area.

His spleen is now enlarged & vein to spleen is weak. They will watch it & if it needs something done that's way later. 

Part of his lung is collapsed & has damage. Possibly from not being able to breath deep enough due to pain, pressure & swelling of everything. He might be able to reverse it by doing breathing exercises. 

They are referring him to a gastroenterologist to get pancreas & the large pockets taken care of. Not sure how or when but that has to be done before they can remove his mass. They ordered more bloodwork today. It's so hard not knowing how to fix this or what to do to help him. Cherish everyday. You never know when your world will come crashing down around you! 

Please keep us in your prayers!