Matt has a follow up with his PCP this morning. Doc said he was shocked when he finally got all his records from Galveston hospital. Doc said he did not realize how severe his pancreatitis was until he got the reports. He was expecting a typical case of normal pancreatitis but Matt's was a really bad case. We are lucky he is even still here with us but there is alot of stuff he still needs to overcome. We are not out of the woods yet. He said their is alot of damage done inside him & he is very concerned. He ordered blood work & a test to check his blood flow thru his body. I'm anxious to get the results. He has been looking alittle more yellow the last few days & even our daughter noticed it today. He is still fighting low grade fever & his liver is hurting more every day. I'm not sure if they are going to do a scan this week but I really hope they do. We need to see if his mass has grown. Please keep us in your prayers. Physically & mentally we are both exhausted. 

Also keep the new friends that I have made during all this in your prayers as well. There are a few people who have been a good rock for me & shared their personal experiences to help me learn what I need to watch for & how I can help Matt better. Even during their hard times they still help others. It gives me hope that the world isn't as bad as we all fear. God sends people to show you the way when you least expect it! 

The home nurse came to visit today. She was very nice. It takes a special person to be a visiting nurse. She went over things with him & wants him to start keeping a log of his sugar, blood pressure, heart rate & weight. I have been taking it several times a day but I haven't been writing them down. He is having more liver pain so I am really wanting that scan next week to check the blood flow to his mass "Julio". The last thing we need is for it to start growing again but that's the risk we take the longer we wait for his liver surgery. His doc told him the slope isn't as steep right now so breath while we can. We are not to the top of the mountain & we have the hardest part of the road ahead. We haven't even go to the most dangerous part of this horrible journey. Hopefully we have ran into all the complications that we are going to hit but no matter what I'm keeping my faith & it will be alright somehow!!! 

Doc appointment today went alright but not the greatest. We was really hoping for a surgery date but honestly I already knew he isn't ready for that yet. Doc wants to do a scan & blookwork maybe next week depending on how he does this week. No clue when surgery will be but he still isn't stable enough. Doc wants to get Matt's weight stabilized also. He has lost over 40lbs within a month. He has to do daily weight checks & drink extra protein drinks. He is eating small amounts but they don't think his body is absorbing the nutrients right since his entire digestive system is so messed up. The horrible cramping pain he is feeling is from small intestinal bacterial overgrowth (SIBO). As the pancreas dies it produces more coliform bacteria which also causes more issues in his small intestine. Also since he was on so many antibiotics it also killed his good bacteria which allows other bacteria to grow out of control. His entire system is messed up & off balance. They want him on probiotics to see if his body can fix it with alittle help. If it don't help they might need to do an antibiotic that targets the area that has the excess bqcteria instead of it going into the blood stream which kills more good bacteria &  causes more side effects. There are complications that can be associated with the process to target the SIBO so it's only if the other stuff don't work. Once they get the scan they will decide how much of his pancreas & other organs have healed or have had more damage done to them. They also want to measure his mass since he is having more pain on that side again. We are hoping it hasn't gotten more blood flow back.They warned us that over time the mass will find alternative blood sources which defeats the purpose of the arterial block they done that gave him pancreatitis to start with. They know he has pseudocysts from his pancreas leaking that also effected the other organs. They need to see how much leaked & what damage it caused to determine how or when to treat that issue. Doc said he isn't really surprised he is having these issues since he has had so many other complications. It also means we need to wait even longer before they can remove the mass.

So it's atleast another week of sit & wait which sucks but atleast he isn't taking major steps back.

I have not updated for a few days. I am struggling to get everything done for everyone & keep things going in order for our Fire Departments upcoming events. Matt is still fighting a fever off & on. He has lost over 35lbs in less than a month. He can't eat much still but he eats what he can. His hiccups are back. More bloating pain & not sleeping for long periods at a time. He is up & down all day & night. He has an appointment next Monday in Galveston. His primary doctor still hasn't got his records from his hospital stay. They wanted me to print them off from my computer but its over 400 pages. Matt is beyond bored but has no energy to do anything even when he is awake which isn't often. Keep us in your prayers & Thank you to everyone who has donated!

I wish I had good news but it's another day of want & see. He is still sleeping most of the day. He is very weak. He is still losing alot of weight. Hoping we hear what the next steps are or atleast when the next scan is so we can get some kind of update on if the mass has found a new source of blood flow or how his pancreas is doing. It would be great if they said there's shrunk & the pancreas stopped leaking. Still holding onto faith cuz that's all we have right now!